Our names are Addison and Cassidy Hempel and we are 7 year old identical twin girls who live in Reno, Nevada. In October 2007, after a two year medical odyssey, we were diagnosed with a ultra rare and fatal cholesterol disease that affects only 500 people worldwide. The disease is called Niemann Pick Type C (NPC) and the condition is frequently referred to as “Childhood Alzheimer’s.” NPC is ultimately fatal in childhood and we are in a battle for our lives.
Addi & Cassi Fund
2013-06-17T15:15:41-04:00By dbisset|Categories: General, Medical, Resources|Tags: addiandcassi, all disabilities, Childhood Alzheimer’s, Niemann-Pick Type C, NPC, Rare disorders, rare or undiagnosed disorder, rare or undiagnosed disorders, resources|0 Comments
About the Author: dbisset
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