by Amy Sequenzia. I RESIST My resistance is an
For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.
Dr. Cheryl Jorgensen's website is an excellent resource for information about inclusive education, best practices, differentiated instruction, universal design, curriculum adaptation, writing standards based IEPs, facilitating social relationships and much more!
Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.
I said a long time ago that I would not only be an real student In a school that supports me but also a self advocate for those lost in segregated settings echoing the dreaded lives of people in the world that are like me without the right supports.
"Thasya", a mini film by Dan Habib, highlights the power of presuming competence, differentiated instruction and augmentative and alternative communication. Inclusion works.
After a three-day conference, I needed to sleep. I needed to sleep because I was dreamy, trying to keep the feeling of being in a place where I can be myself and also be a little bit like a star. Also, building community.
Because I stood with Henry I am happier today and you should too. Henry not only got his rights, he proved that presumption of competence should be the default for every student.
This is not directed at anyone in particular. It is about several people I’ve met throughout my life. I sometimes need to remind myself that being me means following my own agenda and not pleasing the ones who will not be part of my story.
Should it matter that some of us are labeled intellectually disabled? Read the definitions, look at us in a realistic way and ask yourself; Does it matter? Aren’t we all worthy?
Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect.
Henry wrote about inclusion for the Autistic Self Advocacy Network,
The amazingly talented artist Larry Bissonnette, of Wretches Jabberers, will be featured on an upcoming episode of the National Geographic TV program, Taboo.Check it out.