Rare Disease affects over 350 million people worldwide, and the largest percentage are children. There are over 7,000 rare diseases that have been identified all with very unique needs, but many with little to no support. Although each individual disease may only impact a few, together the impact is in the millions. Rare disease is not so rare.
The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the “unifying symbol of hope” – the blue denim ribbon.
The Global Genes Project is a program of R.A.R.E. Project, a non-profit 501c3. R.A.R.E’s leadership is committed to ensuring that its programs support its mission, are relevant and impactful. R.A.R.E. exists to:
- Raise Rare Disease Awareness and Education
- Unify and Empower a vibrant rare disease community
- Fund innovations that support in-their-lifetime rare disease research